Have you experienced unexplained, sudden weight gain? Or, despite the number of times you’ve faithfully stuck to a diet, have you failed to lose weight? If either or both of these…
Dealing with dystonia? Well, here’s an idea that’s tracking well with many neurologists and patients: Botox. Yeah, Botox—for dystonia! Who knew that a little old bovine injection could benefit people…
Cushing's disease is caused by the pituitary gland creating too much andrenocorticotropic hormone, or ACTH. In 80% of diagnosed cases, Cushing's disease is the result of a benign tumor on the…
After talking on the phone with some of my family members, I felt a range of emotions from anger and frustration to guilt and sadness. It breaks my heart because…
Have you ever noticed when you have a cut, and it's healing, you sometimes feel itchy? Those are the mast cells helping your body to heal while helping defend against…
We hear of feuding nations: Countries that share a border, yet can't get along with each other. So, it's heartening when I read of a young girl in Pakistan who…
Para cualquier persona que sufre de dolor crónico, ya sabes lo que se siente. Si usted no ha tenido ese lujo, esto es lo que se siente: Uno se siente…
I’m continuing on my long flight to Brazil, AKA, “Zikaland”—in my opinion, (BTW, I do LOVE Brazilians, I just HATE what’s happening). I’m wondering if Brazil is one of the…
Listen up. This is important for the aplastic anemia community—especially for children who’ve been diagnosed with this serious condition. The Dana-Farber Children’s Cancer and Blood Disorders Hospital in Boston, MA…
Every now and then, I read a story that reminds me of the power of perseverance and a families love. "Mom, it's too late. I'm dying" is one of those stories. From the…
Sometimes when a person has to fight the daily battles with chronic disease, some things just don't seem as important as others. Occasionally, patients with chronic disease are understandably focused…
For anyone who watched the television show "Law and Order," we all know that whatever the case, all the details were always wrapped up in under an hour. Prosecution. Check. Defense. Check.…
¿Quién sabía que el colonialismo podría ser una de las principales causas de las enfermedades raras ?! Al menos, ese es el caso de muchos quebequenses. La tirosinemia, que afecta…
For decades, Venus Williams has been a powerhouse in the world of tennis. Since becoming pro in 1994, she has won 7 Grand Slam Singles titles and was formerly ranked No.…
It's liver awareness month so remember that not all liver problems are related to alcohol use(for example, Primary Biliary Cholangitis). You may never drink a drop nor use any kind…
This Halloween season, I want to revisit a post from more than three months ago that originally appeared on GoFundMe. It has since raised more than $18,000. "Grady will never taste…
What do you think of when you hear "diabetes"? I always think of lots of sugar, soda and candy. Diabetes can really affect anyone's life, as I learned recently from…
You were rear-ended on the Interstate a year ago, and after the obvious injuries healed, you still had pain. But not just pain—really intense pain, and it shows no signs…
Congratulations! You're about to have a bundle of joy! You have names picked out, and you've been preparing for the past nine months to welcome this new little family member.…
Por lo tanto, digamos que usted ha vivido la mayor parte de su vida con un cubo de síntomas que nunca he entendido, y que los médicos nunca han sido…
Los atletas siempre parecen estar en un nivel más allá del alcance de los que les rodean, al igual que un santo o una diosa venerada. Su destreza física es…
Para los veinteañeros, ¿cómo se sentiría si estuviera viendo rápidamente su edad cuerpo? ¿Y si se miraba como una persona de 80 años de edad, por su treinta cumpleaños? O…
Happy Halloween Weekend Patient Worthians! PW Contributor Tom has two of the most popular posts this week! In one, he gives us a surprising outlook on dystonia. Additionally, he talks about…
There is a link between Gaucher disease and Parkinson's disease... but it may not be what you think. A study at Shaare Zedek Medical Center in Jerusalem, Israel, has revealed that…
I wonder if most families have a backup plan—especially when it comes to a family crisis? I’ve been reading about aplastic anemia this summer and am absolutely baffled about what…
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