The holidays are a time of fun, family, and for many of us, a time when our chronic health conditions tend to flare up. We don’t mean for that to…
Sean Dean of Phoenix, AZ is no ordinary sophomore in high school. He is a second degree black belt, enjoys mixed martial arts, and also enjoys singing and dancing. You…
If you’re like me with a chronic illness, then you have to watch what you eat! Especially around the holidays. I LOVE cranberry sauce but whenever someone else makes it,…
Instituto Franciscano para la Ciencia y la Salud en Steubenville, Ohio patrocina la investigación sobre defectos metabólicos que pueden conducir a trastornos convulsivos relacionados mitocondriales raras. Si bien esta es…
Para cualquier persona que todavía está dudando Disautonomía y POTS, yo he llegado con lo que llamo el Challenge Trick Disautonomía Parte. Por favor, ver mi video y probarlo por…
Just over a week until Christmas and Hanukkah everyone! I am counting down the days until the celebrations begin with friends and family, which albeit can be stressful with chronic…
For many, the 21st Century Cures Act could mean the difference between life and death: It will give patients access to drugs that they previously didn't have. Personally, I am…
¿Se ha sentido perdido en su propio cuerpo alguna vez? ¿Alguna vez ha perdido temporalmente su audiencia debido a la masiva sonando en los oídos? ¿Usted ha tenido el mundo…
De acuerdo con la Fundación de Fibrosis Quística, cerca de 30.000 personas viven con FQ en los EE.UU., y sólo alrededor de 1.000 nuevos casos son diagnosticados cada año. La…
It's Frida-yay Everyone! Celebrate it by catching up on this week's Editor's Choice. 'Tis the season of giving and we have a heartbreaking story on a case of gastroschisis that will…
When your body has to work extra hard to breathe because of lung issues such as idiopathic pulmonary fibrosis (IPF), help it out by “eating healthy.” Digesting big, heavy meals…
Need to do some Christmas or Holiday shopping? Today, PW Contributor and super mom with MS Angie Randall is hosting an event, in-store at Athleta in Chicago, IL AND online.…
He estado usando los sitios de citas por Internet durante los últimos once años. También he estado tratando con una enfermedad rara y sin diagnosticar durante los últimos cinco años…
Una de las partes frustrantes de tener la enfermedad de Behçet es que puede afectar a muchas partes diferentes del cuerpo. Y a diferencia de otras condiciones que sólo pueden…
Happy December Friends! Ah, the week after Thanksgiving is always easy for me knowing Christmas is just a few weeks away! This week, we have a story about a doctor with…
Some disease processes shout at you- dramatic symptoms bring you immediately to medical care and treatment. However other unhealthy biological processes are more subtle and are likely to go undetected…
Como alguien que está luchando con una enfermedad crónica, es probable que no es ajeno a los problemas estomacales que vienen junto con el tratamiento o simplemente una realidad de…
Guarnicion para el dia de accion de gracias: porciones: 2 to 4 2 remolachas grandes de oro hinojo 1 bulbo 1 cebolla roja pequeña Opcional: 1-2 colirrábano 3 cucharadas de…
Puedo parecer "bien" para que en el exterior, pero lo que estoy experimentando en el interior no es "fina". Tengo un par de diferentes formas de una enfermedad incurable llamada…
Estoy agradecido por haber sido capaz de abrazar la lucha que tengo contra la terrible enfermedad de la espondilitis anquilosante (EA) y estoy agradecido de que en el proceso, he…
Debido a que es Acción de Gracias, el equipo de Patient Worthy me pidió que compartiera mis pensamientos en la gratitud. Algunos de nosotros podría pensar que sería una tarea…
Happy Thanksgiving Patient Worthians! We hope you are recovering from big meals and continuing to spend time with family this weekend. Editor's choice this week focuses on gratitude expressed by our…
At this time last year, I was 89 lbs and at the beginning stages of recovery from a year of IV and oral antibiotics for the treatment of Lyme disease.…
Having a rare disease is exhausting on so many levels. The pain, the lack of sleep, the lack of money, the doctors’ appointments… Where is the fun and the spontaneity?…
Recently I was asked to write a piece about what I am thankful for this Thanksgiving. My first reaction was, "Oh God, Thanksgiving is actually here again?" I don't have…
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