Too much of a good thing can be dangerous. For people with acromegaly, a rare disease caused by too much growth hormone (GH), an excess of this otherwise helpful growth factor can…
You may have heard the buzz during the Zika outbreak in 2016. Many professionals suspected a relationship between the Zika virus and Guillain Barre Syndrome (GBS). Guillain Barre Syndrome is…
When Kent Allen was told he had a year to live, he was hopeless. A year simply wasn't enough time. According to Waikato Times, over ten years ago, Kent was…
All a Hollywood star needs to do is be seen with a designer outfit, bag, or shoes and that company can be propelled from anonymity into the white, hot spotlight.…
It all started when 12-year-old Mia Trease started having knee pains during a summer of softball. The phone call with the bad news couldn't have come at a worse time.…
The Food and Drug Administration has approved the second cancer treatment that will be totally personalized, proving that these kinds of treatments will become a regular thing moving forward. The…
Biogen's third quarter earnings report isn't looking good these days, putting an uneasy cloud over the biotech sector as a whole. But there is a light at the end of…
Nine-year-old Giovanni Hamilton is a victim to one of the rarest diseases in the world but he won't let it define him. The rare condition is called Schwartz-Jampel syndrome (SJS)…
Ten-year-old Coleman Walsh always wanted to be a professional hockey player and now his dream has come true. According to the Daily Mail, he just signed with the Massachusettss's Babson…
We came across a 2016 CBS story about Harlow, a Golden Retriever service dog on social media that had already reached over 226K Likes on Facebook. This celebrity dog shows…
Check out part 1 of this LGS post here. After prepping: Arrive at the airport early – Ask the airline agent at check-in about getting your wheelchair assistance. Use this…
When a 15-year-old puts on a few pounds, it’s often blamed on too many slices of pizza, or too many hours hanging out online with friends. But what if it’s…
One young lady is working to bring awareness to Gaucher disease through blogging. Not only does Lauren Edwards share inspirational posts and pictures, she also shares the personal stories of…
What happens when you’re not the cancer that everyone is talking about? Funding, research, and headlines can often be noticeably lacking when you’re just a run-of-the-mill, life-threatening gene mutation, according…
On October 22nd, the streets of Oakville, Ontario were sprawling with little monsters, marching out in support of their fellow Liam Cuttle and to raise awareness for Neuroblastoma. This rare…
Forty is the beginning of middle age. I remember when my father turned 40; everything was decorated black. Black balloons. Black streamers. Black icing on the cake. Actually, it was…
We live in a world of over 7000 rare diseases, but perhaps one of the rarest with the most unusual of symptoms is Prader-Willi Syndrome. This genetic disorder affects one…
Spinal muscular atrophy (SMA) is the leading genetic cause of infant mortality in the USA. So why aren't hospitals in Texas screening newborns for it? That's what a group of…
Memerto Tindongan, born and raised a member of the Ifugao tribe in the Phillippines, brought his traditional healing methods, crafting techniques, and old-world minimalism to the U.S. in 1991. As…
A California judge threw out a $417 million verdict against Johnson & Johnson in a lawsuit by Eva Echeverria - who claimed she developed ovarian cancer after using Johnson &…
The Bank of America building in Dallas, Texas will light itself up in turquoise on Saturday October 28th to show support for Dysautonomia Awareness Month. Everything's bigger in Texas, including…
Traveling is certainly possible and can be more relaxing with some pre-planning and organization. Some of these ideas may not be applicable to you and your family. I have compiled…
Another free event for MDS patients and caregivers is being held by the MDS Foundation! Where: Residence Inn New York the Bronx at Metro Center Atrium Rooms A&B (second floor)…
Do you ever find yourself tossing and turning in bed for several nights in a row? You might just have a lot on your mind or you might be suffering…
It's been a great year for the Los Angeles Dodgers. Their loyal fans are eagerly awaiting their first World Series play in 29 years on October 24th. One loyal Dodgers…
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