GW Pharmaceuticals is a British biopharmaceutical company known for its treatment in multiple sclerosis. They are also known as one of the pioneers in the cannabis industry. Since they were…
Sean Dixon had his dreams of becoming a cop come true when the Suffolk County Police Headquarters made him a detective for the day, but after two years of battling…
New findings are coming from a recent study led by researchers at the Journal of the American Medical Association (JAMA) that could have long-term implications for Zika Virus research. Evidence…
A team of researchers at the Cincinnati Children’s Hospital Medical Center has developed a method to test for Gaucher disease using dried blood samples - marking a big breakthrough for the Gaucher…
There's a new treatment for X-Linked Hypophosphatemia (XLH) that may be available in the not-so-distant future. XLH occurs when the kidneys process phosphate abnormally, leading to excess phosphate loss in…
When I was 16 years old, I was uber-concerned about boys, prom, my pin-straight hair, boys, and how much gas I had in my car. But for 16-year-old Alexis Mae…
The International Myotonic Dystrophy Consortium was held in San Francisco last month and while Patient Worthy was not there in person we were fortunate to have a family reporting from the…
There's an app for everything right? It seems like every day a new app is being created to make life easier, for better or for worse. In the case of…
Happy Friday Patient Worthians! This week, we some news to be happy about! We have an awesome story of how thinking like a start up will help lead to more…
Two-year-old Max Payne from Immingham, England, holds onto the yellow rail of his play pen as he stands up. He glances up at the video camera for a moment, and then…
There’s been a lot of talk in recent years about interdisciplinary projects. The idea is to put together people with different skillsets to address problems. The goal is for everyone…
I hear a lot of talk about technology these days. There seems to be a growing group of people who argue that it creates more problems than it solves. It…
Lucy Babcock is in her fourth year in college and so close to acquiring that diploma and pursuing grad school. Most people suffer from senioritis but Lucy is battling out…
Lily Ayres, at the ripe age of 2, has been fighting a rare disease ever since she was born. Little Lily suffers from Moebius syndrome and because of it, she…
The Pediatric Stroke Warriors were formed in 2015 and have thus grown into the biggest childhood stroke nonprofit out of the Pacific Northwest Region. Their mission is to strengthen communities…
After the long hard fight against Sturge-Weber syndrome, 23-year-old Craig Morrison could fight no longer. He passed last Monday following complications with his rare disease. Sturge-Weber syndrome springs at birth…
Prescription drugs have always been overly expensive but there's now hope for these prices to drop down. On Tuesday morning, the Senate Health Committee held a hearing to discuss the…
A young girl from Australia had her period when she was 4-years-old. According to Independent, young Emily Dover is well on her way to experiencing menopause at the young age…
Exploding paper-mache volcanoes. Solar systems made of styrofoam balls. Carrot electricity. I remember the sights, smells, and sounds of my high school science fair as it was yesterday. Those earth-shattering…
Last year in London, a flash mob took the streets and pounded out a choreographed routine to the song "I Am What I Am". They weren't just having a blast…
It seems like copper is all the rage right now. A quick stop by any pharmacy shows copper-infused knee, ankle, wrist, and even back braces. Even the ironman of the…
Date of issue: October 19, 2017 Boxing legend Michael Carruth was today firmly in Cystic Fibrosis Ireland's corner at Dublin's Irish Film Institute for the launch of a new awareness…
Sherry Jo Ward sits in an orange armchair, playing harmonica in the center of the stage. She leans forward on the matching ottoman for emphasis. Her walker is never out…
Meet the Eaton family. Every since their son Vincent was born with Multiple Hereditary Extoses (MHE), they've united as a family to find ways to combat the rare disease. And…
As the world turns, so do advancements in gene therapy. Technology is changing our world so drastically that soon gene therapy will be simplified into a one-shot treatment. With it,…
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