Insane (But True) Optimism for CRPS Spirits
Not everyone can appreciate a sarcastic sense of humor. And for whatever reason, this dry sense of humor usually comes with a warning. So this is yours. Please be advised…
Not everyone can appreciate a sarcastic sense of humor. And for whatever reason, this dry sense of humor usually comes with a warning. So this is yours. Please be advised…
Obtener un diagnóstico de cualquier tipo es miedo. Obtener un diagnóstico de una enfermedad autoinmune rara y potencialmente mortal que nunca han oído hablar de es aterradora. Pero si estás…
Man, I’m not so sure that I believe in angels, but my heart is overjoyed whenever I hear about strangers who’ve donated ANYTHING to help ANYBODY! With aplastic anemia—depending on…
It has been said that there is strength in numbers, and we are much stronger together! That’s probably why I connected with Shira Strongin, a young teen who lives with…
Outside his window, Josh watched, enamored, the colors of the sunset shifting, turning the sky orange, and then pink, and finally a bruised purple. He could almost forget where he…
Your health could seriously be jacked if you have the JAK2 gene. Why? You're likely affected by primary myelofibrosis, a genetic mishap that causes scarring in the bone marrow. Of…
When we need it most, stories can inspire, encourage, and quite frankly, make us feel good. Especially if the story is about a super cute little eight-year-old girl who was…
En el 2009, una cepa desagradable de la gripe, la gripe porcina es decir, corrió alrededor del globo golpear a la gente hacia abajo como si fueran bolos. Los primeros…
You know what's awesome? Blogs. They're a great medium for people to: get out their thoughts in writing educate the public teach something about which they're passionate rant about politics…
Well, for anyone who's looking for information about neuromyelitis optica (NMO) or what’s also known as Devic’s disease or Devic’s syndrome—AND who happens to have a spare 45 minutes on…
Since I was very young, I have been mesmerized by the athletes in the Olympic games. The power, the grace, the dedication, and the celebration. I remained glued to my TV for…
Anyone born before 1955 probably remembers exactly where they were when President John F. Kennedy (JFK) was shot. I've heard people reminisce about that moment right down to what they…
When tasked with delivering a life-changing diagnosis, it’s refreshing to hear that there are more doctors than not who understand the importance of how to share turning point news. If…
Concientización ... Activismo... Abogacía Estas son sólo algunas de las palabras que usamos para exigir medidas a cualquier persona ya sea los líderes mundiales, las industrias, los amigos o la…
Some auto-inflammatory disease symptoms are triggered by colder temperatures. Systemic Auto-inflammatory Disease Support (SAID) has several winter tips for people who suffer from these diseases. Examples of these diseases are…
You're sitting across the desk from your doctor having just been told you have myasthenia gravis, or MG. Suddenly she starts dropping words like "diplopia" and "acetylcholine." She looks expectantly at…
I don’t know about you, but on very cold days, which seems to be the norm these days (even in the South), I crave hot foods like a hearty soup…
Her name is Katelynn. Junior in high school. Third-year starter for her volleyball team, and a good one at that. She has it made... except for one thing. She suffers…
Recently, while looking for information about precocious puberty, I discovered a very cool site. It has a surprising, on-the-surface name: Hippo Education Blog (Apparently, Hippo’s short for Hippocrates, the Greek…
Hanna Gully era una niña con un sueño: que un día iba a viajar por el mundo, y se atreven a hacer todas las cosas que había establecido su mente…
Robert comenzó su misión de dar a conocer la fibrosis quística después de conocer a alguien que había vivido con ella durante cuarenta y un años. Como él mismo dice;…
En los últimos años, Casey Higgins, una mujer de 27 años de edad, Ohio, ha requerido de oxígeno suplementario 24/7 para ayudarle a respirar. Diagnosticada con fibrosis quística, enfermedad genética,…
Happy New Year Everyone! How are those resolutions coming along? This week, we have a powerful post from one of our contributors who stopped taking her meds in favor of alternative…
Childhood is a time for innocence, exploring, and fun. It has always been said that children grow up too fast and each moment should be treasured. First words, first steps,…
When it comes to autoinflammatory conditions, like CAPS, there is no one size fits all approach. There are a lot of variables--that's what makes these conditions so difficult to diagnosis,…