“In the pipeline” means something pretty special for people living with rare diseases that have no cure, such as neuromyelitis optica (NMO or Devic disease). Far from the divisive protests…
Arginase is an enzyme that helps break down nitrogen, a waste product of the body's protein metabolism. Nitrogen is converted into urea and then excreted from the body through urine.…
Santa's not the only person making Naughty or Nice lists--and here's how to stay off of at least one of 'em! I gotta admit, I’m new to the Tourette syndrome…
Está bien, todos ustedes, amantes del perro, escuchen! Love 'em todo el ya desea ducha de su propio perro, el perro de su vecino, un perro al azar en el…
Carcinoid syndrome occurs when a carcinoid tumor secretes certain chemicals into the blood stream. While rare, most of these tumors are contained in the gastrointestinal tract. Symptoms include, but aren't…
Alveolar capillary dysplasia, or ACD, is an extremely rare disease. In fact, there are less than 200 cases discussed in medical literature. It's caused by a genetic mutation in the…
Okay, I’m just baffled. Baffled. I’m trying to process my feelings as I’m writing this article because, well, that’s what women have to do sometimes. So, I just posted two…
In today’s research world, the practice of teamwork has gained in popularity. This is especially true for researchers who work to better understand Neuromyelitis optica (NMO). NMO is an uncommon…
It is hard to study rare diseases because there are so few people with them. Patients are scattered all over the world. Many are children. Many cannot travel. How to make…
OMG. It’s a Friday afternoon and as I’m sitting here, my heart is breaking for people with neuromyelitis optica, a very rare disease that use to be considered a rare…
Holy. Frickin’. Crap. I’m going to admit right off the bat: I know less than nothing about mixed martial arts in general and the UFC in particular. I wouldn’t know…
Children can be cruel. It's an age-old saying. I don't feel it excuses the behavior, but it is often offered up as a reason for the seemingly heartless behavior children…
Imagine being healthy one day, then hospitalized the next, and your way of life irrevocably changed? For many people with short bowel syndrome (SBS), that is exactly what has happened…
Most everyone these days has heard about multiple sclerosis (MS) but aren’t so familiar with neuromyelitis optica (NMO), which is also called Devic’s disease or Devic’s syndrome. What’s so important…
The kid who sat behind me in high school chemistry class most likely had obsessive compulsive disorder, more commonly called OCD. I say this because whenever he was asked a…
Happy Thanksgiving Patient Worthians! We hope you are recovering from big meals and continuing to spend time with family this weekend. Editor's choice this week focuses on gratitude expressed by our…
A team research of uber-smart researchers in Seoul, South Korea, have published their study on how common a dual diagnosis of fibromyalgia is in patients who have Sjogren's syndrome as…
The Narcolepsy Article of Your Dreams Some people would give anything to be able to get take a nap or just fall sleep whenever they wanted to. But that is…
How often may we get the chance to hear about how a doctor feels in dealing with their own chronic conditions? Not very often, right. Well, watch this interview from…
I love chocolate. Who doesn't? Forget the chips and candy… chocolate is numero uno for me. Well, it turns out that there may be another wonderful thing about chocolately goodness:…
You wake up from a full night's sleep. You begin your daily routine: Get dressed, brush your teeth, comb your hair... and suddenly you have no more energy to do anything…
A recent study suggests there may be relief for dry eye sufferers. Researchers at the Scripps Research Institute found promise in introducing regenerative cells to the gland responsible for tear production. The…
dolor colosal. hinchazón de mamut. Hipersensibilidad. Los cambios drásticos en la temperatura corporal. Imagínese estar en ese tipo de dolor todo el tiempo. Francamente, suena un poco como una pesadilla.…
Have you been looking for a treatment for factor XIII (FXIII), or fibrin stabilizing factor, deficiency? You may be among the estimated one in 3 million people suffering with lifelong…
Si las enfermedades raras estaban participando en un concurso de belleza, donde la "belleza" significa "poco conocido", "mal entendido", y "casi imposible de diagnosticar" -Ehlers-Danlos (EDS) sería a la altura…
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