So, it’s Friday afternoon, and you’re at work in a crammed meeting room. You’re looking forward to dinner with some friends. Only two more hours to go. All you’ve gotta…
Tyrosinemia is a hereditary disease that causes a disruption in the body's ability to break down tyrosine, an amino acid. The liver lacks the correct enzyme and, as a result, it…
Linus from the "Peanuts" comic strip is infamous for carrying around his security blanket while sucking his thumb. It is this same idea of a comfort object that has soothed…
Inspiration is important because it provides us with a glimpse of the fact that we can be great. But inspiration is not what fuels change, inspiration is fleeting. It’s what…
Vamos a volar su mente durante un minuto. Hay aproximadamente 7.000 diferentes tipos de enfermedades raras, y más se descubren todos los días. De acuerdo con genes globales, hay 30…
I vividly remember being four years old and going to the doctor with my mother and sister for a very important event: my sister and I were getting two vaccinations.…
Some people would give anything to be able to get take a nap or just fall sleep whenever they wanted too. But that is not the case for someone who…
Are you a person living with trigeminal neuralgia (TN)? Are you aware of the Facial Pain Association (FPA)? Well, you should be. This organization is incredible!! Focused on people with TN, this…
In the midst of an ugly American presidential post-election, I am actively looking for inspiration to distract me from this mess. And man, was I lucky! There’s a gal who’s living…
Although people living with familial hypercholesterolemia (FH) continue to work for increased awareness about this disease, it is an exciting time for those who are living with it. According to…
Alguna vez has tenido uno de esos días en los que no se sentía muy entusiasmado acerca de su vida? Tú sabes de qué estoy hablando. Los blues de ho-hum.…
Mahatma Gandhi taught that we should endeavor to be the change that we wish to see in the world. (I believe Gandhi may have been on to something). I'm wondering…
The 21st Century Cures Act passed in the House last week but supporters have been waiting with bated breath for the verdict from the Senate. Today, it passed. In fact,…
We all need to be able to turn to family and friends when we've got a problem. There is a strong link between the support we receive and our well-being. It…
When faced with the unexpected, we often are overwhelmed with fear about of what lies ahead. If you or a loved one have dealt with a devastating medical diagnosis, many…
When your body has to work extra hard to breathe because of lung issues such as idiopathic pulmonary fibrosis (IPF), help it out by “eating healthy.” Digesting big, heavy meals…
Need to do some Christmas or Holiday shopping? Today, PW Contributor and super mom with MS Angie Randall is hosting an event, in-store at Athleta in Chicago, IL AND online.…
He estado usando los sitios de citas por Internet durante los últimos once años. También he estado tratando con una enfermedad rara y sin diagnosticar durante los últimos cinco años…
Baby Isabella (pictured above) is in serious need of a hospital transfer. Her condition Gastroschisis, is rare. She needs a facility with people who have the most experience caring for…
I used to work with a woman who had a houseful of kids, so she always had an interesting story to tell. One story that stands out to me is…
How many of us are guilty of spending countless hours just scrolling through Facebook? I know I'm guilty of that. Just checking out pictures and watching videos. It's great to see…
Lately, I haven’t been particularly mindful of hope. In truth, sometimes I feel like it’s more suited to children’s fairy tales. But the more I’ve turned the issue around in…
Growing up in the New York City area, the fear of ticks was drummed into me. The tiny little buggers could hitchhike home with us tucked in the waistband of…
Una de las partes frustrantes de tener la enfermedad de Behçet es que puede afectar a muchas partes diferentes del cuerpo. Y a diferencia de otras condiciones que sólo pueden…
If you have Ehlers-Danlos Syndrome (EDS), life can get a bit complicated. Between doctors not knowing what you have to trying to figure out what treatments to use, it can…
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