Even good things can be bad in excess. I was always taught that moderation is the key in all things. Is it ok to drink that glass of wine? Yes.…
Alison Laird is 42 years old, and she has GNE myopathy. The disorder causes the progressive deterioration of muscles. It eventually causes immobility. For anyone, the news of this diagnosis…
According to a recent study in Science Daily, scientists have found evidence that one treatment drug's effect on the cells for a specific condition could actually be applied to several…
Senator McCain has been a prisoner of war, has had a history of melanoma, and is 80 years old, so last Friday’s routine check-up didn’t end up being so routine.…
Dogs truly are man’s best friend. They share our lives with us, but now unfortunately, they also share our cancers. There have been speculations for a while that there are…
Learning as much as you can about your diagnosis is the first step toward empowering yourself to take control of your life and make decisions that will help you live…
I started seeing George in the beginning of my second year of college. It was a great, no-strings-attached, friends with benefits “relationship” that was fun and carefree. After a couple of…
In writing for Patient Worthy, we’re privileged to discover some amazing stories of how people live with—and live through—the adversity of having a rare disease such as adrenoleukodystrophy (ALD). Sadly,…
Parents will do anything for their children, especially Jeremy Cortner, father of son, Casey. According to Journel Sentinel Casey was diagnosed with craniosynostosis at birth, which is a rare condition…
We like it when people achieve great things despite insurmountable obstacles. This is not unique to living in the modern world or being an American; however, this is a big part…
If you've been looking for great psoriatic arthritis info, then you're in luck! We found an incredible website devoted to everything related to psoriatic arthritis. The aptly named psoriatic-arthritis.com is…
There is a rare disease—and I do mean rare because less than 100 people in the world have been diagnosed with it—and it has an uncommonly long name. Get ready…
The American Porphyria Foundation has a section on its website dedicated to telling patient stories. It gives voice to people's experiences and allows them to connect with others and share…
Sometimes I muse considering the first person to pioneer certain things. For example, who looked at mushrooms growing out of a decaying log and thought: “Yum”? Or how about the person…
I think it’s safe to say most people probably dream of making the world a better place in some way. Many of us are able to do just that by…
All Camden Fuller’s parents want is for him to have the chance to be healthy, grow up, and live a fulfilling life. That’s what every parent wants for their child.…
Fifteen is such an awkward age. Your body is growing; you might not have gotten past the clumsy, gawky, gangly stage yet. You’ve started to look at the opposite gender…
Alfred, Lord Tennyson wrote, “’Tis better to have loved and lost than never to have loved at all.” This may be true for love. If you have loved before, you…
Listen up, sun worshipers, there's yet another reason to slather on SPF 105. Researchers are now exploring the link between melanoma and Parkinson's Disease (PD). The root cause is not…
Food allergies are nothing new. For two decades, the portion of children with a peanut allergy has essentially tripled. Eggs. Soy. Wheat. Fish. Onions... They’re all common food allergies. Besides…
According to the Daily Mail, 18-year-old Lewis Nickell from Northern Ireland has Tourette syndrome. The condition is characterized by a mixture of voluntary noises and movements referred to as tics.…
Whether it’s hiking the rainy hills of Kauai, sleeping over the water in Bora Bora bungalows, exploring inside Neuschwanstein Castle in Germany, or looking over the picturesque Matterhorn, there are…
Leave it to a sports award show to recognize what a real fighter looks like. ESPN's annual award show (the ESPYs) honored 15 year-old Jarrius Robertson last week with the…
Have you ever been handed a questionnaire at the doctor's office and wondered why and how it was relevant? Where does it go? Who has the time to read all…
One grandfather in the UK is took a nontraditional route to show his love and support for his granddaughter and her rare disease. Some people run 5Ks, some people go…
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