Si usted tiene narcolepsia, somnolencia diurna excesiva, y / o cataplexia, usted sabe lo difícil que puede ser para funcionar en el tiempo del "mundo real". Y mientras que los…
When most people think of inflammatory diseases, they tend to think of conditions that affect the joints, the skin, or organs in the digestive track. But imagine if the inflammation…
For those who watch the efforts to combat chronic diseases from the sidelines, it’s easy to see the war as one where humans are the underdogs facing a huge, formidable…
Gemma Daysh, a mum from Portsmouth, Hampshire was featured on BBC South Today on 3rd January, 2017 to highlight the fight faced by the cystic fibrosis community to gain access…
When you or a loved one just receive a diagnosis of Gaucher disease (GD) it’s only natural to feel distressed, concerned, and worried about the future. Undoubtedly, you have many…
Did you know that we have chemicals in the brain as powerful as drugs for pain, depression, anxiety, and other conditions? Among them are neurotransmitters called endorphins, serotonin, oxytocin, and…
Living with a chronic illness is not an easy task. There are obstacles that have to be faced daily. My oldest daughter has a severe peanut/tree-nut allergy that we discovered…
En esta cuenta, desde Philly.com, el Dr. Thomas Klein, alergólogo e inmunólogo, describe su problema. Un misterio se había encontrado en su camino que no se creía capaz de resolver.…
There’s an interesting blog post you’ve got to check out—especially if you’ve been feeling guilty about telling people “No” while living with or caring for a loved one who has…
Parkinson's disease is a progressive neurodegenerative disorder that slowly takes away a person's ability to perform even the simplest tasks. It is caused by the brain's inability to continue to…
A 10-year-old boy in Colorado will be ringing in the new year with a new kidney, and his parents couldn't be more relieved. Marcus Root suffers from cystinosis, a rare…
Rare disease living comes with its own set of highs and lows. Experiencing a myasthenia gravis crisis can be a terrifying ordeal. And not just for the person with myasthenia…
A little more than a year ago, a little girl in Michigan was critically ill. Doctors were hopeful they could help her, but there were no guarantees. Lilly Vanden Bosch,…
Cuando uno es joven, saludable y próspera, es difícil imaginar que es posible ser derribados por una enfermedad crónica, como la espondilitis anquilosante (EA). Como muchos jóvenes, "M" estaba libre…
Click here to read Part 1 of Theresa's HAE Diagnosis. A couple of months later I flew back to Nebraska, got sick on the plane with an abdominal attack at…
Besties are… well… the best! Lauren Smith just earned a Best of the Besties award for friendship by deciding to run in the Marathon de Paris 2017 on April 9,…
So many workouts, so many excuses. Running? Cramps in your side. Swimming? Hate getting wet. Pilates? Expensive. Spin class? A headache. Walking? Um... Finally, an exercise truly devoid of downsides.…
Non-alcoholic fatter liver disease (NAFLD) is near and dear to my heart. Let’s just say we go waaay back. Before I get to how we “met,” let me give you…
Ir a la universidad es un gran cambio para cualquier persona. Lo más probable es que vive en una ciudad nueva, que habita en una nueva habitación, y rodeado de…
Ammonia. Even if you don’t know much about it, you know it’s great for cleaning but not so great for ingesting. You… you do know not to ingest it, right?…
When I was 20 years old, my new husband and I celebrated our marriage with family and friends, with a luncheon where there was no alcohol. Neither of us drank…
Sometimes, the only things you can do are what is necessary in life-- the things that are possible. Keep doing just that and soon you may find that you can do…
Have you ever counted how many pills you take in a day? I have and the answer is way too many. Like the other 50 million Americans today, I have…
The word Love. What does that mean to you? Most people say: "Well holding hands, kissing, and spending lots of time together." Love is a strong word. I feel if you…
Aaron es un graduado de la universidad de veinte-cuatro años de edad que viven en Alabama. Él es un empresario que se especializó en gestión de pequeñas empresas. Su padre…
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