Nolan’s Dystonia Symptoms
I think, the earliest I can remember of any issues that I was having with dystonia were just not being able to hold a drumstick or a mallet. I used…
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Nolan’s Dystonia Symptoms
Nolan’s Dystonia Diagnosis
The process to get diagnosed was a very long one. It was over two years that I first started seeing a neurologist regarding the concerns and issues that I was…
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Nolan’s Dystonia Diagnosis
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For People on the Verge of Supporting the Dystonia Cause
Superman, where are you now? Look no further than Warren, Michigan. Not many people may know or have heard about dystonia. It is a neurological movement disorder that complicates mobility…
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For People on the Verge of Supporting the Dystonia Cause
How This Man is Opening Eyes to the Truth Of Dystonia
If you don't know what it's like to live with dystonia, then you need to watch this Youtube video by Shawn Fairchild. A brave man living with dystonia, Fairchild shows…
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How This Man is Opening Eyes to the Truth Of Dystonia
Finding the Right Doctors
I discovered this neurologist, my current neurologist, through an occupational therapist who was trying to help me learn to live with whatever condition I had at the time, because I…
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Finding the Right Doctors
Editor’s Choice: Tired? There’s Reason for Hope
Happy Labor Day Weekend Patient Worthians! We hope you can spend this weekend's extra time with friends and family while gearing up for fall! This week we have a post…
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Editor’s Choice: Tired? There’s Reason for Hope
Meet Nolan
My name is Nolan,and I'm from Virginia Beach, Virginia. At this time the dystonia will effect just about anything that I do, but my one true passion is running. I…
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Meet Nolan
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Dystonia: Why Should Sufferers Have Reason for Hope?
Classified as a "chronic movement disorder," dystonia may appear to some as a disease of the muscles. Like it's cousin Parkinson's disease, however, dystonia is actually a neurological defect. While it's…
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Dystonia: Why Should Sufferers Have Reason for Hope?
Editor’s Choice: What NOT to Ask, Sorry Not Sorry
Welcome to this week's Editor's Choice! When you have a rare disease like dystonia, you come across a ton of different reactions from people in regards to your illness. One…
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Editor’s Choice: What NOT to Ask, Sorry Not Sorry
Dystonia is Making My Brain Crazy
My brain is CRAZY! At least, that’s the way I feel. I cannot explain how infuriating it is to have what I refer to as, a dystonia brain! So, what’s…
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Dystonia is Making My Brain Crazy
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Don’t Ask: Does it Work?
There is currently no cure for most chronic health conditions so treatments are focused on reducing symptoms. I live with a condition called dystonia, a painful neurological movement disorder. Like…
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Don’t Ask: Does it Work?
This Mother Will Protect the World Like It’s Her Daughter
Some illnesses elude even the most educated and experienced medical professionals. Yet, no matter how rare their disease, people need to be diagnosed quickly for an accurate treatment plan to be initiated.…
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This Mother Will Protect the World Like It’s Her Daughter
Damn, This Kind Woman Makes Us All Look Bad
Casey Noe is living with a rare disease that affects almost every aspect of her life, but she doesn't let it stop her from helping others who also suffer from…
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Damn, This Kind Woman Makes Us All Look Bad
Editor’s Choice: How Dystonia Feels, POTS and Sugar, and More!
Welcome to this week's Editor's Choice Patient Worthians! This week, we want to spread some info on what it feels like to actually live with rare disease. Not just about…
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Editor’s Choice: How Dystonia Feels, POTS and Sugar, and More!
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Cutting Board Chops Kitchen Time in Half for Parkinson’s Patients
Some people diagnosed with Parkinson’s disease or symptoms of dystonia may feel like they’re living in world that’s rapidly shrinking. As their shaking, tremors, and involuntary muscle contractions increase over…
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Cutting Board Chops Kitchen Time in Half for Parkinson’s Patients
What Does Dystonia Feel Like?
Dystonia is a neurological movement disorder characterized by uncontrollable, involuntary muscle spasms and contractions, causing repetitive movements, twitching, twisting, and/or abnormal postures. Muscle contractions can be sustained or intermittent and…
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What Does Dystonia Feel Like?
This Rare Dad Owns His Dystonia
Photo by Sandro Georgi Photography "Don’t let Dystonia define who you are. Don’t let it control every single aspect of your life. For myself, it is part of me. It is…
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This Rare Dad Owns His Dystonia
It’s Halfway Through 2016 and We Want to Share Some Awesomeness with You!
We are halfway through 2016 and we want to thank you Patient Worthians, old and new, for reading, sharing your stories, and supporting our patient contributors and writers! As a…
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It’s Halfway Through 2016 and We Want to Share Some Awesomeness with You!
Editor’s Choice: Myasthenia Gravis Awareness and Dystonia Fashion
Happy Almost-Father's Day Patient Worthians! This week, we have some important information on the rare disease myasthenia gravis in the spirit of June being it's awareness month. Also, have you ever…
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Editor’s Choice: Myasthenia Gravis Awareness and Dystonia Fashion
My Dystonia Fashion Statement
What do you never leave home without? Is it a purse? Your wallet? Keys? Yeah, I have all of those things too. But September through May, and dozens of other…
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My Dystonia Fashion Statement
Editor’s Choice: An Instagramable Week of Selfies, Fitness, Twins and Adolescence
Happy Friday Patient Worthians! Just because Cystic Fibrosis and Lyme Disease Awareness Month is over, doesn't mean we won't stop fighting the good fight for spreading awareness about these diseases! We…
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Editor’s Choice: An Instagramable Week of Selfies, Fitness, Twins and Adolescence
Helpful Suggestions or Harsh Judgement? Living with Rare Disease
While I truly believe that people are well-intentioned, their opinions and comments often miss the mark when it comes to what we experience living with dystonia, or any other chronic…
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Helpful Suggestions or Harsh Judgement? Living with Rare Disease
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This Bike-Rider Will Make You Want to Raise Awareness Right Now
When UK cyclist Andrew Beale decided he was going to throw his support behind The Dystonia Society, he didn't waste time getting sponsors. With nearly $400 pledged, he was disappointed to learn that…
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This Bike-Rider Will Make You Want to Raise Awareness Right Now
The Power of Connecting: It’s Better Than Vacation!
Have a rare disease? Have you ever been to a national patient conference? These are invaluable opportunities to connect with others who share your challenges and concerns! Imagine being in…
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The Power of Connecting: It’s Better Than Vacation!
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The Story of Dystonia and a Family Event
A mother of three in Scotland had experienced dystonia symptoms since childhood, and these symptoms got progressively worse over the years. Like so many with a rare condition it took…
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The Story of Dystonia and a Family Event
