Being a caregiver is among the most important jobs a person can take on, but it comes with its own set of perils: isolation depression sleep deprivation So, if you…
Gran yerba! Parche de marihuana en camino ... Y No estamos soplando humo. Zynerba Pharmaceuticals está trabajando hacia parches para entregar los productos químicos derivados del cannabis directamente al torrente…
There [are] treatment[s] for symptoms for dystonia. For neuropathy they can give you things like anti-depressants which have been known to curb neuropathy. They can do botox injections into the muscles…
Doggone, it feels good to fight amyloidosis! The condition causes abnormal proteins to be deposited in organs like the kidneys and heart. That's got bad news written all over it. But…
Mientras que el verano vientos hacia abajo, muchos de nosotros están luchando para conseguir una vacacion más. Ya se trate de un día en la playa, un picnic en el…
Hey, do you like helping people--especially people who have amyloidosis? Also, do you live in or near New Jersey? Or will you be in the area later in September? If…
Kallmann syndrome is a genetic condition caused by hypogonadotropic hypogonadism (HH), of which four separate types have been identified. People with Kallmann syndrome experience olfactory deficiencies, and puberty that is either…
Sjögren’s syndrome is an autoimmune disease that affects the moisture-producing glands in the body, including the salivary and tear glands. Very often, it's accompanied by rheumatoid arthritis. It's thought to…
Saturday September 24 is FH (familial hypercholesterolemia) Awareness Day, and it couldn't come soon enough. That's because, according to new research published in Circulation (the journal of the American Heart Association),…
Antes de que un conductor atropello y fuga golpeó Pat Brogan mientras montaba su bicicleta, él nunca había oído hablar de la distonía, un trastorno cerebral que causa calambres musculares…
People with Laron syndrome, an autosomal recessive disorder, have mutations or deletions of the GHR gene which results in a type of dwarfism. It is most commonly seen South America, in Mediterranean countries,…
Here’s a charming and ultimately optimistic little story about how a mother’s vigilance combined with the right doctors and hospitals can make a real difference in a child’s life—and how…
Aplastic anemia is both a bone and a blood disease. A person with this condition has bone marrow that no longer makes red blood cells, white blood cells, or platelets.…
The National Lipid Association hosted its 2016 Scientific Sessions from May 19-22 of this year and included sessions on familial hypercholesterolemia (FH). Now, in recognition of FH Awareness Day (September…
La distonía puede retardar su cuerpo, pero que no puede matar su espíritu Pocas veces en la vida son tan emocionantes -o tan agitado, como los últimos días de la…
De la inmunodeficiencia de puede causar aumento de peso. Eso no es ningún secreto. Pero a menudo, inmunodeficiencia variable común (CVID) pacientes se sorprenden cuando empiezan a aumentar de…
Esté atento a WebMD. Google está a punto de dejarte retorciéndo en el piso... Usted puede creer que uno de cada 20 búsquedas de Google están basados en la…
Welcome back Patient Worthians! Are you looking forward to 2017? Well you should be if you have HAE! Ever heard of Botox? If you have, you probably think of Hollywood…
Pharmaceutical marketing can often be a very big, very sharp double-edged sword. In order to make drugs and stay in business, pharmaceutical companies have to speak to their audience, which…
It's not a happy story. Little Riley Brown beat the odds and celebrated his first birthday last April. Two months later, he passed away from the rare congenital disorder called…
What do you think of when you hear "cystic fibrosis"? Well, if you know what it is, probably nothing good. If you don't know about cystic fibrosis and you've clicked…
Cuando la Cámara de Representantes aprobó una ley innovadora, Ley de Curas siglo 21, en un voto de 344-77 voto, la decisión se sentía como un desfibrilador, el despliegue…
On February 7, 2016, an elderly man died in the foothills of the San Gabriel Mountains. Okay, but why is that remarkable? After all, elderly men and women pass away…
Maybe it’s just me, but it feels like turning on the television, picking up a newspaper, or going online should come with a trigger warning. Everywhere you turn it seems…
Most people don't associate the word "fever" with something chronic. They think of it in terms of a flu or passing infection. You've heard the phrase: "Feed a cold. Starve a…
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