Depending on the intricacies of our personal health challenges, some of us may be motivated to take actions that others would find unreasonable. For example, I once met a man…
When Ashley Owen was a year and a half old, her family received news that would forever change their lives. As described through her silent but powerful Youtube video, Ashley…
In the "Don't judge; you never know what someone's going through" department.... Oh. My. GAWD! This woman is awesome! Growing up, this young woman blogger, whom we'll call Ezzie, was…
Q: What do Fergie, Josh Dumal and Scott Niedermayer have in common? A: They are celebrity spokespeople for CureDuchenne a nonprofit organization that raises awareness and funds research to find a…
In an ordinary world, one girl faces an unexpected fight. Fated to take on the mantle passed down by her mother, she must defend her life against this incredible foe. Will she deny…
Living in the 21st century’s wireless information economy can be both a blessing and a curse—there’s so much information out there, you can learn pretty much anything about everything. But it’s…
When you hear the word "narcolepsy," you may think of Rowan Atkinson's character in the movie Rat Race. He has narcolepsy, a disease characterized by frequent bouts of day-time sleepiness. Throughout the…
The Estevan Kinette's Club requests the pleasure of your company at their inaugural Princess Ball at the Beefeater Plaza in Estevan on January 16th. Please come expecting to dance,…
Happy Friday Patient Worthians! We are rounding out our Cystic Fibrosis campaign with CysticLife this week. For the past few weeks, Patient Worthy has been supporting CysticLife's collaboration with the Mayo Clinic for a…
This year’s holiday season was difficult. Allow me to explain by saying that it was great to be with my family after at least 20 years of not being in…
Living with Duchenne muscular dystrophy (DMD)? If you aren't familiar with Solid Biosciences, you should be! Here at Patient Worthy, we give credit when credit is due. We root for…
Click here for part one and here for part two of Sue's Story! When we left off Sue was battling hives (everywhere) and had received the diagnosis of Chronic Idiopathic…
Henderson, NV, January 14, 2016 – The life science trade publication PM360 today announced that Patient Worthy™ won Gold in the category “Consumer Website” at the annual Pharma Choice Awards.…
Can you believe it? Patient Worthy has made it to the big times by winning an award for being the best patient-centric consumer website. We're stoked! But here's what really counts:…
Listen up, people! Are you living with a neurological disease or condition? Do you want to inspire people by sharing your personal story on video? If so, the American Academy…
A weakened immune system doesn’t have to stop the fun, that’s for sure. The Immune Deficiency Foundation will hold two Teen Escapes this summer— an awesome weekend away for teens…
Myasthenia gravis (which is Greek for "grave muscle weakness") is a neurological disease that causes a person's voluntary muscles to weaken. It mainly affects women under 40 years old and men…
When I think back to my school days in the South during the 1960s and ‘70s, I’m still haunted by some of the crazy things that I witnessed. For example,…
If you have familial hypercholesterolemia, or FH, having a doctor who truly understands the disorder is essential. In a short YouTube video, Katherine Wilemon, president of the FH Foundation offers some…
We are happy to say that through our partnership with CysticLife.org and our awesome readers like yourself, Patient Worthy was able to hit one of it's New Year's Resolutions already....…
Researchers at Stanford University School of Medicine have discovered a gene that could possibly reduce the risk of cardiac issues, like heart failure. What's weird... it's the same gene, when mutated, that was…
Treatments for autoinflammatory diseases commonly require a patient to receive injections under the skin, which can be tricky if you are the parent of a small child (or large husband) who…
Michael Needham is a Vietnam veteran who served in the Navy before being discharged as a result of his ankylosing spondylitis (AS). In order to live with the pain of his…
By now, you may have heard of the website, Pinterest, which came to the public's attention in 2011. Or, you may be one of millions who actively engages with the…
Life would probably be easier for three-year-old Kayden Bell if doctors could determine a diagnosis for him. So far, he's been diagnosed with microcephaly, global developmental delay, hypomyelination and dystonia with…
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