How NOT to be Defined by Dystonia
Have you ever wanted to push your own limits and break out of your comfort zone? If so, you’ll know that it is difficult because getting out of your routine…
Have you ever wanted to push your own limits and break out of your comfort zone? If so, you’ll know that it is difficult because getting out of your routine…
Playing games with your mind? That's exactly what experts believe you should do to stimulate your brain and stay sharp, no matter how old you are. You might be surprised…
Conozca a Brittany! Brittany estaba desanimado después de ir a un restaurante y tener la camarera ignoran por completo de ella cuando la distonía hace que le sea difícil…
Invitado Blogger: Pamela Sloate transmite algo de su ropa sucia neurológica en su entrada en el blog original, Dis * aliviar tu inquietud. Hay un número de palabras desagradables en…
Have you ever tried to convince legislators–especially your state’s Senator to support a cause–such as dystonia–that speaks to your heart? If so, you’ll know that it’s difficult because you need…
If you have dystonia, you know the following: The quirky urge. A funny tingle. That little voice in your head. These are your gut feelings talking. But what are they…
Celia Godfrey is awesome; there's just no debate about it. I wish I had her positive attitude. The seven-year-old lives with dystonia, a neurological condition that affects communication between the…
Dystonia is a movement disorder that makes muscles contract, sometimes regularly, sometimes randomly. It can cause abnormal, often repetitive, movements, postures or both. Like others, this disease does not age…
Call me crazy, but I’m pretty sure September was trying to kill me. The whirlwind romance with summer is over. All the front displays of the supercenters showcase the brilliantly…
Have you been in search of a firm diagnosis for your health concerns? Are you wondering if "it" could be dystonia? If so, you know that it’s a difficult journey…
Sabemos que la sobre exposición al sol provoca una situación grave quemadura o sus cortezas, pero ¿sabía usted que el sol puede ser especialmente peligroso para las personas con una…
Happy Fall Friday Patient Worthians! This week we have the amazing story about a woman with dystonia. We also have a video review of a man diagnosed with CVID. Additionally,…
When I was young, my grandfather delivered coal. And when I asked, “How much coal did you deliver today, Papa?” He always replied, “A shit ton!” That was Papa’s favorite unit of measurement.…
I want to see my kids grow up. I just want to see them a happy, that’s all. I think that goes with just about any parent; they just wanna…
I am THAT mom. I don’t like or take medicine unless it’s my last resort. And the same goes for giving it to my children. To a fault, I follow…
How does a diagnosis of dystonia change your life? Dystonia is a disorder characterized by involuntary muscle contractions that cause slow repetitive movements or abnormal postures. The movements may be…
Have you ever tried to run a marathon? If so, you’ll know how taxing and strenuous the race can be on your body. Now, consider this: What if you had…
Do you experience pain? Weakness? Swelling? Burning sensations? Dull ache over an affected area? Oddly enough, your career may be the source of your symptoms. Not to stir panic but…
Have you ever tried your hand at fundraising--especially for a rare disease like dystonia? If so, you’ll know that it’s difficult because there are so many factors involved. Without a…
"Feliz Mes de la conciencia para la distonía!" Tal vez "feliz" no sea la palabra adecuada ... Porque, mientras que separa la conciencia es siempre algo que celebrar, la distonía…
People with dystonia, may have a new treatment option: brain surgery. Sure, it doesn't sound fun, but according to Dennis Russel, having the procedure for his essential tremor was "a…
How many 22 year old kids do YOU know who live WELL with a chronic illness? Uh, I can’t say I know many other than one kid who has type…
Now that I've puffed on this piece from the Hippocratic Post, I thought I'd pass it on to you. Mike Barnes, a professor of neurological rehabilitation at Newcastle University, is…
El perro de trabajo: Perros de Servicio compiten para la medalla de oro Mientras que las campañas presidenciales de 2016 se ponen en marcha, estadounidenses están tomando a las urnas…
Happy Friday Patient Worthians! We have two intriguing stories from PW contributors this week, detailing their plight with rare disease. Additionally, we have a pretty cool outcome for a pretty cool kid…