Upcoming IDF Session on CGD!
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Upcoming IDF Session on CGD!

A special session on CGD will be presented at the 2017 IDF National conference. CGD is a primary immunodeficieny disease and is characterized by skin infections, both fungal and bacterial,…

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Scientists Insist Exercise May Change Course of IPF Progression
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Scientists Insist Exercise May Change Course of IPF Progression

If you or your loved one is living with idiopathic pulmonary fibrosis (IPF), scientists have proven that there is a link between exercise and longevity—especially for people who have IPF.…

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One Doctor’s Fight Against His Castleman: This Time, It’s Personal
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One Doctor’s Fight Against His Castleman: This Time, It’s Personal

Not many people can say they’ve dedicated their life to curing the disease that could lead to their death, but David Fajgenbaum certainly can. In a fascinating Science Magazine article, David…

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Insurance Company’s Treatment of Immune Deficiency Patient Earns Them a Big Middle Finger
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Insurance Company’s Treatment of Immune Deficiency Patient Earns Them a Big Middle Finger

While the national conversation on healthcare has recently and rightly focused on the political debate over the Affordable Care Act’s future, it’s worth remembering what’s happening on the “street level”…

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Is Marijuana the Future of Treatment for LGS and Other Epilepsies?
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Is Marijuana the Future of Treatment for LGS and Other Epilepsies?

Marijuana use is certainly controversial and a debated topic. But what's less debatable is the progress of the movement to legalize and embrace it American society - especially for medicinal use.…

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Narcolepsy: A Teenager’s Story
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Narcolepsy: A Teenager’s Story

Imagine watching movies with friends, not knowing that you have narcolepsy and struggling to stay awake. Your eyes keep rolling and you keep fighting to stay awake. Yet you cannot.…

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