Guideline-Based Care Might Reduce Cerebrovascular Illness in Sickle Cell Disease
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Guideline-Based Care Might Reduce Cerebrovascular Illness in Sickle Cell Disease

According to a story from Healio, a recent study has found that use of hydroxyurea in alignment with treatment guidelines has the potential to bring down symptoms of cerebrovascular disease…

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NFL Player Tevin Coleman Discusses Daughter’s Sickle Cell Disease (SCD) Diagnosis
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NFL Player Tevin Coleman Discusses Daughter’s Sickle Cell Disease (SCD) Diagnosis

  On the field, Running Back (RB) Tevin Coleman has done some amazing things. He has played in 94 games, gained 3,319 rushing yards, and scored 25 touchdowns. Off the…

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What We Don’t Talk About Could Hurt Us: Discussing Race, Genetics, and Treatment Decisions
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What We Don’t Talk About Could Hurt Us: Discussing Race, Genetics, and Treatment Decisions

The concept of “race” occupies a perilous crossroads at this moment in American history. Some would argue that we live in a “post-racial” world since the election and re-election of…

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ICYMI: US Scientists Break Ground by Modifying Human Embryos for the First Time
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ICYMI: US Scientists Break Ground by Modifying Human Embryos for the First Time

Your hear that? It's the sound of the future knocking on the door! The MIT Technology Review reports about the first-known experiment to edit human embryos in the United States using a…

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Editor’s Choice: Donating, Battling and Healing in the Face of Rare Disease

Welcome to Friday Patient Worthians! This week we have a PW Contribution on one woman's battle with Stiff Person's Syndrome. We also have a piece on using fear to serve you in…

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Calling All with Sickle Cell in the Chattahoochee Region: Event to be held in Columbus, Ohio May 20th

The Association of Sickle Cell, Lower Chattahoochee Region (ASCLCR) is an organization dedicated to funding sickle cell research and aiding all those affected by the disease within the eight counties…

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