I vividly remember being four years old and going to the doctor with my mother and sister for a very important event: my sister and I were getting two vaccinations.…
Some people would give anything to be able to get take a nap or just fall sleep whenever they wanted too. But that is not the case for someone who…
Are you a person living with trigeminal neuralgia (TN)? Are you aware of the Facial Pain Association (FPA)? Well, you should be. This organization is incredible!! Focused on people with TN, this…
In the midst of an ugly American presidential post-election, I am actively looking for inspiration to distract me from this mess. And man, was I lucky! There’s a gal who’s living…
Alguna vez has tenido uno de esos días en los que no se sentía muy entusiasmado acerca de su vida? Tú sabes de qué estoy hablando. Los blues de ho-hum.…
Mahatma Gandhi taught that we should endeavor to be the change that we wish to see in the world. (I believe Gandhi may have been on to something). I'm wondering…
The 21st Century Cures Act passed in the House last week but supporters have been waiting with bated breath for the verdict from the Senate. Today, it passed. In fact,…
We all need to be able to turn to family and friends when we've got a problem. There is a strong link between the support we receive and our well-being. It…
When faced with the unexpected, we often are overwhelmed with fear about of what lies ahead. If you or a loved one have dealt with a devastating medical diagnosis, many…
When your body has to work extra hard to breathe because of lung issues such as idiopathic pulmonary fibrosis (IPF), help it out by “eating healthy.” Digesting big, heavy meals…
He estado usando los sitios de citas por Internet durante los últimos once años. También he estado tratando con una enfermedad rara y sin diagnosticar durante los últimos cinco años…
Baby Isabella (pictured above) is in serious need of a hospital transfer. Her condition Gastroschisis, is rare. She needs a facility with people who have the most experience caring for…
I used to work with a woman who had a houseful of kids, so she always had an interesting story to tell. One story that stands out to me is…
How many of us are guilty of spending countless hours just scrolling through Facebook? I know I'm guilty of that. Just checking out pictures and watching videos. It's great to see…
Lately, I haven’t been particularly mindful of hope. In truth, sometimes I feel like it’s more suited to children’s fairy tales. But the more I’ve turned the issue around in…
Una de las partes frustrantes de tener la enfermedad de Behçet es que puede afectar a muchas partes diferentes del cuerpo. Y a diferencia de otras condiciones que sólo pueden…
If you have Ehlers-Danlos Syndrome (EDS), life can get a bit complicated. Between doctors not knowing what you have to trying to figure out what treatments to use, it can…
When you live with a life-changing disease like myasthenia gravis, or MG, it’s normal to feel down or have difficulty adjusting to the loss of control. For many, it’s easy…
If you had the opportunity to gaze into a crystal ball and see the future, would you do it? And if you did, and you noticed something amiss, would you…
When you have a rare disease like ankylosing spondylitis (AS), one of the most annoying things your doctor can say to you is: "Well, you need to exercise more." Why…
I know it’s perverse, but the second thing that popped into my head when I read about iron-based proteins and ALS, was a toy I loved as a kid. There…
Oye, ¿te gustaría ser capaz de usar pantalones cortos en cualquier momento que desee, incluso en pleno invierno? Suena bien, ¿verdad? ¿Qué hay de poder comer tanta sal como desee,…
¿Qué es la sarcoidosis? ¿Has oído hablar de él? Es una enfermedad inflamatoria que se caracteriza por granulomas, o en términos simples, una colección de células inmunes que se depositan…
Todo el mundo ama un poco de misterio, excepto cuando se trata de tipos de mal agüero de enfermedades autoinmunes. En un artículo de Rare Connect, un sitio web que…
Sometimes it feels like nothing is going your way. Though it can be difficult, try to find the positive. Silver linings can make a world of difference.
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